The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers who have an interest in dementia. The aim of this APPG is to raise awareness of dementia among parliamentarians, and to influence legislation and policy making, with the aim of improving the lives of people living with dementia and their carers.
The Group meets several times a year. Each meeting has a focus on a specific issue that affects people with dementia. The APPG also conducts inquiries on issues that are relevant to people living with dementia. Last year the focus was on dementia and co-morbidities.
The All-Party Parliamentary Group on Dementia has recently launched its 2018 programme with an inquiry into dementia and disability.
Dementia falls within the legal definition of ‘disability’ (within domestic and international law) however the public, organisations, families and people living with dementia may not view the condition as a disability.
This is an inquiry about rights: people with dementia face challenges in having their rights upheld across all areas of life, including access to healthcare services and being enabled to live independently in the community.
This is partly because dementia is a ‘hidden’ or ‘invisible’ disability.
The APPG is investigating the barriers that people with dementia face in having their rights met and how these experiences have an impact on daily life.
The APPG is gathering evidence for this inquiry and welcomes submissions from as wide a range of organisations and respondents as possible. Whether you are a family carer, a person living with dementia, an organisation providing care and support for people with dementia or someone who has an interest in human rights and dementia, your contribution to this inquiry is important.
The key questions are:
1 – Please describe your views on dementia being identified as a disability
2 – Do you feel that people with dementia are treated differently to people with other health conditions or disabilities?
3 – How have people with dementia been supported to live well and what else do people need in order to continue to live well?
4 – What do you think are the main challenges that people affected by dementia face in day-to-day life (for example using transport or in employment)?
5 – What support currently exists to address these challenges and what future action do you think needs to be taken to address these challenges?
You don’t have to answer all the questions and you can elaborate on any points you wish to make with narrative from your real-life experience and/or case examples.
You can submit your response by means of an online survey or in a text document which should be emailed to firstname.lastname@example.org
The APPG is run in partnership with Alzheimer’s Society, which provides administrative support and expert advice to the group.